Thank you to the brilliant, visionary, cheeky, and utterly fabulous Dustin Dale Barlow for having fun with me dressed in my favo(u)rite celebratory colo(u)r in the heart of New York’s Chinatown.
He’s the real deal.
For an hour I felt like the very best of myself.
For an hour I felt like the very best of myself.
Rising like a phoenix from an artistically abundant, but privately quite challenging (but ultimately victorious) summer of health ups and downs.
Oh friends. I realize I'm being a little cagey and secretive about my health right now. There is a huge energetic difference between things that are "secrets" and things that are "private." Secrets contain deception, shame, fears of being disconnected with. Private points to things that are personal, not embarrassing or shameful but belong to a select, intimate few.
I
have never wanted my experience with ulcerative colitis to be secretive
and drenched in any kind of shame. But I often sit on new while I
collect information-- and this particular era of my life there have been
a lot of waiting, wondering, holding patterns and "no new
developments."
I really wanted my surgical journey in 2021 to mean the end of me discussing illness
ever again publicly OR privately— but c'est la vie. Life happens.
We persevere.
All to say: this 60 mins of
artistry and playfulness and celebration was more than a treat or a “play date”— it was a
victory.
These glorious photos were was last Saturday
I was in surgery Wednesday.
And I’m still rising — stronger than ever— on this Monday.
On the other side of the latest chapter. Onward.
Upward.
Ever-rising.
Inextinguishable.
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