"End of Summer" by Stanley Kunitz

An agitation of the air,

A perturbation of the light

Admonished me the unloved year

Would turn on its hinge that night.

 

I stood in the disenchanted field

Amid the stubble and the stones,

Amazed, while a small worm lisped to me

The song of my marrow-bones.

 

Blue poured into summer blue,

A hawk broke from his cloudless tower,

The roof of the silo blazed, and I knew

That part of my life was over.

 

Already the iron door of the north

Clangs open: birds, leaves, snows

Order their populations forth,

And a cruel wind blows.

— Stanley Kunitz, "End of Summer" from The Collected Poems of Stanley Kunitz

 

Things I want to remember about this week 8/9-8/14: a List

Oh London. I have returned. I am new. I am unchanged. The World is altered. The World is the same.

 Standing in on the same patch of the South Bank I stood upon on March 16, 2020 -- the day before the world closed down, and seeing that the river, the bridges, the city, the sky-- are all still here. 

I will never tire of a stroll through Borough Market and the bells of Southwark Cathedral.

Reunion with my dearest London pals the day before rehearsal. So much has changed. So much has not.

Finding this "Banksy" on my walk to work...

Marvelling how every. single. item is literally exactly where we left it 18 months ago... 

Not to recreate. But to create anew...

I took this photo on March 16, 2020, after a desperately sad, confused, and terrified walk to the theatre to retrieve my belongings, and I wept for our show and the world. I didn’t know if I would ever see this marquee—and all it represents—ever again. The next day I boarded a ghostly-empty plane home to New York and we all know what came next…

Tomorrow I return to the Menier Chocolate Factory and to Indecent in London, reuniting with the same, small group of people I was “in the plane crash with.”

I don’t know that I have ever been filled with so many emotions the night before a first (re)rehearsal. Yes, excited, joyous, relieved, moved and SO grateful; but equally anxious, terrified, overwhelmed, underwhelmed, and desperately sad. All of it. These, plus countless questions…

All I can do is serve.

Everything is exactly the same (the same clothes, props, words, shoes, even the wigs are in the middle of being re-set…) Yet NOTHING is the same.
Nothing.
Not the world.
Not my physical body.

I miss my husband and family.
I feel faraway from my medical team.
Yet, when your job has always been more than “just a job,” when it is a calling, one answers the call. And it sometimes comes with great sacrifices.

After everything we have collectively and personally endured, I’m re-evaluating and re-weighing what all of it means to me in so changed a reality.

You too?

I think living inside Uncertainty is more than merely “healthy,” it is an essential part of claiming our human-right to peace. But living inside Uncertainty is a practice, and one I endeavor to, daily.

So here we go.   

“From the ashes we rise…” 

Not to recreate. But to create anew.

 

The [RE]humanization of our role models

I have a couple of things to say as a person sometimes in a position of leadership, role-modeling or mentorship.

I think we all could benefit from the reminder that the people we look to as teachers, mentors, guides, inspirations, wisdom-sharers, and leaders are also only human - just like you.

Admiring people to the point of assuming they are all-knowing, or have it figured out for everyone, is not actually flattering OR kind. In fact, it bypasses their inherent humanity, which leads to easy and huge disappointment.

That disappointment occurs when the person we admire displays anything other than our idea of their perceived perfection. It also separates them from us and creates/perpetuates hierarchies that are not actually real or helpful.

We've been conditioned to do this. Hopefully, once we see how unhelpful and unnatural it truly is, we can choose to try and unlearn this.

When we forget this, we essentially remove their permission (in our eyes) to be a whole person.

All to say, I am, just like you, ALSO only human. I'm moving through my own nuanced, messy, not-always-100%-correct decisions, experiences, and life.
As are we all.

California 2021

 No words. Just family. Sunlight. Mountains. Friends. Sea. And joy.

Present and pain-free: an example

This is a photo of me on February 4, 2021. My wedding day! It was also the exact halfway point between my first and second bowel surgeries.

Look at that lady: radiating health and happiness! That’s the real me.

And yes, in that photo of a healthy happy woman in her prime, there is also a life-saving ostomy bag beneath the (glamorous AF) gown.

I think there is a time when that detail would’ve concerned me a great deal— but on February 4, 2021? All I felt was alive and in love.
 
I am overjoyed in this photo— not only because I am marrying a man I adore, but equally because I feel so FULLY ALIVE. So PAIN FREE and PRESENT for the first time in so very long. I am not thinking about my gut, about being curled in the fetal position, or worried that I’ll be in so much pain I won’t be “present” on my wedding day…
 
No. I am experiencing joy! And I know that my courage, endurance, and the unparalleled skills of my medical team helped me feel this FREE. I wish I could take past Al by the hand—the Al convinced no one would ever love her or commit to her because of colitis—and whisper to her scared self “Giiiiiiirrrrrrrrrl wait ‘til you see yourself in your wedding dreeeeeessssss.”

Alec said over and over again

“We MUST not wait to get married until you no longer have the ostomy—I LOVE that stoma. It saved the love of my life! Give yourself the gift of loving yourself unconditionally THAT MUCH.”

He’s smart.

If you think for one moment that living with illness, IBD, an ostomy, or enduring multiple major surgeries will rob you of life’s joys: think again. It GAVE me this joy. Over and over again I have learned that *true* beauty begins with true health, self-acceptance, happiness and inner peace.

Take a look at that photo and *behold.*

Things I want to remember about this week 7/10 - 7/17, 2020: A List

- a great deal of "clothing optional" swimming and sunbathing. Not sorry at all. 

- A glorious trip to San Francisco centered around the LGBTQAI+ journey and history in this historic city. 

- Eating delicious bao and dim sum in downtown San Francisco 

- A foggy drive across the Golden Gate bridge whilst listening to this... 

- Meeting my new friend and teacher, poet Thomas Centolella for the first time IRL (a friendship born, believe it or not, of this very blog!)  

- meeting my new friend and soul-sister Leta from ^ Tom's poetry class (because even though I attend online from New York, the class is held at College of Marin County... where I am as we speak. Fate!)

- Muir Woods. ....Magic. 

- Tati being extra

- beautiful drives

-  introversion paradise

- marveling at a mask-less California (is this... the Time Before?!) 

- seeing so very many hummingbirds

- writing poems 

 

- reading Phillip Pullman's The Amber Spyglass on audio-book as we float in the pool.

- Drinking wine flights in Sausalito with my love

- meeting important people to Alec who now live in NoCal.

- cooking so many delicious things from the farmer's market 

- preparing to leave the USA for London...

38

This is a special birthday. It almost feels like a RE-birthday!

38 is...

• The atomic number of strontium
• The Messier object M38, a magnitude 7.0 open cluster in the constellation Auriga 
• The most common eye-test for color blindness. (see [or don't see?] right) Most people will see the number 38, but people with red-green color blindness might see 88 instead.
• The number of slots on an American roulette wheel (0, 00, and 1 through 36; European roulette does not use the 00 slot and has only 37 slots)
• The number of years it took the Israelites to travel from Kadesh Barnea to the Zered valley in Deuteronomy.
• The "over-38 rule" is a feature of the NBA salary cap that affects contracts of players who turn 38 during their deals.
• Of course, a "38" is often the name for a snub nose .38 caliber revolver. 

This is “38 and feelin GREAT!” 

This is FLIRTY-8! 

This is THIRTY-GREAT!

All.

I am filled with joy, gratitude and relief to have reached 38 with a CURED and totally healthy body at long last. (Aging is a privilege!) I get to spend this day reveling in, and surrounded BY, family and natural beauty. Isn’t being alive THE BEST GIFT EVER? 🎁

Further, the dream come true of being wedded to my love, Alec, emerging from a difficult era of our modern times with love, family, art, and my health.

There is an Italian saying: “a healthy man has a thousand wishes, a sick man has only one.” — well that wish came true for me this year and today, I celebrate *extra*

Thank you for all of your love and support, always.

— Al

 

"From the ashes we rise..."

There are no words to express how profoundly moved I am to return to this incredible play and production, with this company, in my theatrical motherland, in this brilliant theatre.

One of the remarkable things about theatre is its relationship to repetition and “sameness.” We will wear the same clothes, say the same words, make the same movements…it is the same but the world is not. My body is not. 

We shall tell our story through new lenses of humanity and it will resonate in new ways. The rain Rifkele and Manke fall in love in shall celebrate this new beginning, and like falling tears, shall mourn all that we have lost.

Art is the essential work of our souls, and of tomorrow. 

And tomorrow is almost here.

Ale Brider.

"Live performances will resume at London's Menier Chocolate Factory in September with the reopening of the European premiere of Paula Vogel's Indecent. Starring Broadway's Alexandra Silber, the show began performances on March 23, 2020 prior to being shut down due to COVID-19. Helmed once again by the show's Tony-winning director Rebecca Taichman, Indecent will play from September 3 through November 27.

In addition to Silber, the cast of Indecent will include Cory English, Beverley Klein, Finbar Lynch, Molly Osborne, Peter Polycarpou, Joseph Timms, Merlin Shepherd, Anna Lowenstein and Josh Middleton." -- via Broadway.com

 

"Separation" by W. S. Merwin

Your absence has gone through me
Like thread through a needle.
Everything I do is stitched with its color.

 

— W. S. Merwin, “Separation” from The Second Four Books of Poems

 

The Shame

Dear All, 

 Thank you all for the most incredibly supportive response to the news of my surgeries. I never dreamed I would be so uplifted, for I was certain that sharing would bring about responses of pity and disgust.
 
I have been struggling to confess the full spectrum of this experience for I, like so many people, felt EXTRAORDINARY SHAME. Shame is The Great Destroyer, and Irritable Bowel Disease, or 'IBD' is a disease that thrives on shame; it grows in intensity and strengthens in the darkness-- just like all toxic narratives we foist upon ourselves and project onto others.

As a society we rarely talk about bowel health, and thus bowel diseases (and all conditions like them) take root—and accelerate—in that silence.

I wavered when it came to posting a photo of myself with my ostomy, honestly portrayed. But I realized that the image was powerful, in two ways:
     1. Perhaps someone out there needs to know that ostomy-life is not so bad, it is, in fact, a GIFT.
     2. Although I bid farewell to my bag and stoma yesterday, I felt it was important to hold myself accountable to the shame I felt by posting a photograph of The Truth below my clothing. I had to proudly display my body in an empowered way to prove to myself (above all others) that there is nothing to be ashamed of.

By sharing our truths (however challenging), we shed light upon our shame and it shrinks. It shrivels. We take our agonies and they are identified with, supported, lightened somehow. We are not alone. We do not have to live in the shadows or on the sidelines of this one glorious life.
 
Thus, here I am: talking about it.
Because (as I said yesterday) SILENCE IS SHAME’S GREATEST NOURISHMENT.
Secret-keeping is how shame transforms into viciousness,
isolation,
fear
and disconnection.

Thank you for giving me the gift of feeling less isolated, for your blinding goodness, and above all, for connection. Connection is the great reward of vulnerability.

Onwards with courage and integrity. 💜

© Emma Mead

 

J-pouch surgery news

 [CW: surgery, disturbing images]

After nearly 7 years dealing with severe Ulcerative Colitis, on November 30, 2020, I had my entire large intestine (aka, the 'colon') completely removed.

I wanted to share this news from a more processed  place, with radical honesty.

The last 6 months has been an awe-inspiring *three-surgery process.* It has cured me of ulcerative colitis PERMANENTLY. Though the experience has been psychologically confrontational, horrifying, inexpressibly painful, and awe-inspiring, every aspect has felt truly miraculous. TODAY is the first day of my healthy, ostomy-free, colitis-free, flourishing life.

Here is how is went:

- PART 1 (Nov 30, 2020) — total removal of the large intestine 

- PART 2 (March 1, 2021) — creation of what is called a “J POUCH” out of my small intestine, to ultimately serve the function of a “new colon” 

- PART 3 (May 24, 2021) — the attachment of the J-pouch to the *traditional exit* with the only evidence being a scar. Freedom.

 Science is *AMAZING.*

This procedure is extreme. My medical team and I did not make the decision lightly. Colitis can be a brutal, rabid, greedy, relentless jerk. Mine was the giant jerk-kind. And it was often—though I never ever wanted to admit it to myself or show it to the world—life-destroying.
 

Oh friends, I never wanted to complain. I possess perspective upon the horrors of the times we live in— and acknowledge that SO many fellow human beings are struggling. I wish to be a source of light.

But truth be told, it has been hell. I’ve lost a so much. I’ve also learned and grown and gained a great deal. Wisdom is earned.
Life is both.
Life is all.
I crave, and humbly ask for your shared humanity.

•
 
Today, I underwent my final surgery!
This was a life CHOOSING surgery, as much as a life SAVING one.

Thank you to Dr. Sergei Khaitov, my colorectal surgeon.
Mount Sinai Hospital.
Mama Silbs.
Alec.
And too many close friends to name.

I write this from my hospital recovery bed in floods of grateful tears. I did it.

Onwards with courage and integrity,

Al x